My Lung Cancer Journey...

My story might seem unusual, but it’s a reality for more than you might think. As a vibrant, younger woman diagnosed with Stage IV non-small-cell lung cancer at just 33, I’ve had to confront a disease that most people picture affecting only older individuals, often with a history of smoking. But here I am, challenging those stereotypes every day.

My symptoms started innocuously with chest tightness and a decrease in my exercise tolerance, which didn’t immediately raise alarms for lung cancer. It took several misdiagnoses before an eagle-eyed radiologist noticed a concerning sign on my X-ray that a previous scan had also shown. That led to deeper investigation which revealed a mass pressing on my airways—cancer, as it turned out. Hearing I had Stage IV lung cancer was a devastating moment, fundamentally altering my envisioned future of a career, marriage, and children.

Despite the grim prognosis, I’ve been fortunate to access targeted treatments thanks to advances in genetic testing. Treatments have not only extended my life but also allowed me to continue practicing medicine and advocating for others facing similar challenges. This experience has taught me the importance of advocacy, particularly in lung cancer, where funding and awareness lag far behind other cancers despite its high mortality rate.

My mission is to help provide you with key information to empower you to effectively advocate for yourself

I’m driven to advocate for more funding, better research, and greater awareness so that lung cancer patients can have better outcomes. It’s vital to push for wide- spread screenings and educate on the realities of lung cancer, which can affect anyone—even those like me, who’ve never smoked and lived active, healthy lives.

Moreover, my journey has highlighted the importance of equity in healthcare. As a doctor myself, I’ve seen first-hand how disparities in treatment and literacy can affect outcomes. I’m using my voice to advocate for all patients, especially those who might not have the same access to quality care that I did. My mission is to ensure that every patient, regardless of background, is heard, respected, and given the best chance to fight cancer.

Personal Growth and Advocacy:

Personal growth can be achieved alone by researching and self-earning, but advocacy is a collaborative process aimed at helping patients and caregivers grow, develop and achieve their full potential to be able to effectively advocate for themselves and their loved ones.

Know your rights as a patient:

  • Receive care in a safe setting.

  • Have access to your clinical records and that it is kept confidential.

  • Have their personal health information    protected and kept private and secure.

  • Have a healthcare provider that is  invested in your well-being.

Know your rights as a caregiver:

  • Receive information about the illness and proposed treatment with the patient’s consent.

  • Receive all necessary information from the medical team with the patient’s consent.

It's incredible how powerful we are when we're clear on who we are and what we stand for.

- Dr. Sydney Barned -

Lung Cancer Patient. Advocate & Medical Doctor